I think the majority of you know by now, that I have epilepsy. I was diagnosed when I was about 13. That’s a whole other long story that I’ve blogged about before on here. Anyway…
This weekend it came time to renew my prescription for the medication that keeps said epilepsy under control. I usually keep ahead of this so that I never run out. I was a little ahead but not by much, 5 days…I thought. For reference sake, it turned out to be three days.
Hubby’s work benefits just kicked in, and without them it was too costly to stay further ahead in the medicine department. I’m giving you all this back story for a reason, stay with me if you will.
I called the pharmacy on Saturday to renew these miracle meds. (pft) ahead of time as I always do. This time to my horror was different. I had a very frazzled (Not at me) but kind pharmacist answer the phone. She told me that there is a Canada wide shortage on the medication that I need. I’ve never in my entire life experienced anything like this.
No one, not doctors or pharmacies in all of Canada can get enough for their patients. This gets worse…
They expect this to be the case for at least 6 months, but it could be longer. No one knows. No one is being told anything.
My pharmacist is actually having to constantly turn down requests for this med.,so she can cater to her customers first. She rations what they do have (Which is very little) to her regular customers. It’s so extreme, that she was only able to give me enough meds. to last me another 7 days. Add that to the 3 days (That I thought was 5 days) and that gives me 10 days.
The pharmacy can’t even promise that they will have more to give me in 10 days. They can’t promise this because what they’re told, and what is done is not consistent.
You may be thinking; “Well just find another med. to control the seizures.”
It’s not that simple and here’s why.
I’ve been on this med. for over 20 years. It’s very addictive, the second I lower the dose by even half (I’ve tried in the past) I begin to have seizures. Not only that, I can’t sleep. I’m dependant on this med. to sleep. No sleep=seizures.
I would have to spend weeks coming off this med. (Which is time I wouldn’t have given the circumstances) very slowly, whilst just as slowly starting a new one.
The last time I tried this, it was bad. The width-drawl is brutal and causes seizures, not to mention all the other side effects of both meds. The old and new.
Add into this scary story, that I’m allergic to a lot of the anti-seizure meds. So again, switching to a different one is not a good plan. Most of the medications in this family have a number of pretty awful side effects but the one I’m on, has less than the majority.
If I were to have to start a new kind, I would likely be a zombie all the time. Right now, I just deal with lethargy. I don’t want to be a zombie.
All this to say, I don’t know what’s going to happen in the next 10 days, but I sure hope I can continue to get the medication I need or I’m in trouble as are many others dependent on it.
Have any of you ever experienced anything like this? What would you do?
There is hope…I hope!